Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | CDE Files |
|---|---|---|---|---|---|
| PROMIS Physical Function 6b | The PROMIS Physical Function 6b assesses physical function through a grading scale of daily living activities. |
Core - Adult | Physical Functioning | English, Spanish |
|
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish |
|
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish |
|
| Tobacco, Alcohol, Prescription medications, and other Substance 1 (TAPS 1) | The Tobacco, Alcohol, Prescription medications, and other Substance (TAPS) Tool measures the participants tobacco use, alcohol use, prescription medication misuse, and illicit substance use in the past year. |
Core - Adult | Substance Use | English, Spanish, Swedish |
|
| Tobacco, Alcohol, Prescription medications, and other Substance 1 (TAPS 1) | The Tobacco, Alcohol, Prescription medications, and other Substance (TAPS) Tool measures the participants tobacco use, alcohol use, prescription medication misuse, and illicit substance use in the past year. |
Core - Adult | Substance Use | English, Spanish, Swedish |
|
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese |
|
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | |
| Adult Demographics | The Adult Demographics measure background information on adult participants. |
Core - Adult | Demographics | English, Spanish |
|
| Pain, Enjoyment of Life and General Activity (PEG) | The Pain, Enjoyment of Life and General Activity (PEG) scale is used for quickly assessing and monitoring chronic pain. |
Core - Adult | Pain Intensity | English, Spanish, Swedish |
|
| Pain, Enjoyment of Life and General Activity (PEG) | The Pain, Enjoyment of Life and General Activity (PEG) scale is used for quickly assessing and monitoring chronic pain. |
Core - Adult | Pain Intensity | English, Spanish, Swedish |
|
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | |
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | |
| Pain, Enjoyment of Life and General Activity (PEG) | The Pain, Enjoyment of Life and General Activity (PEG) scale is used for quickly assessing and monitoring chronic pain. |
Core - Adult | Pain Intensity | English, Spanish, Swedish | |
| PROMIS Physical Function 6b | The PROMIS Physical Function 6b assesses physical function through a grading scale of daily living activities. |
Core - Adult | Physical Functioning | English, Spanish |
|
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish | |
| Tobacco, Alcohol, Prescription medications, and other Substance 1 (TAPS 1) | The Tobacco, Alcohol, Prescription medications, and other Substance (TAPS) Tool measures the participants tobacco use, alcohol use, prescription medication misuse, and illicit substance use in the past year. |
Core - Adult | Substance Use | English, Spanish, Swedish | |
| Adult Demographics | The Adult Demographics measure background information on adult participants. |
Core - Adult | Demographics | English, Spanish |
|
| NIDA-Modified ASSIST | The NIDA-Modified ASSIST is a self-report measurement to assess participants for risky substance use. |
Core - Pediatric | Substance Use | English, Spanish |
|
| Pain Catastrophizing Scale Child (PCS-C) | The Pain Catastrophizing Scale Child (PCS-C) measures emotional responses to pain in children. |
Core - Pediatric | Pain Catastrophizing | English, Spanish |
|
| Pain Catastrophizing Scale Child (PCS-C) | The Pain Catastrophizing Scale Child (PCS-C) measures emotional responses to pain in children. |
Core - Pediatric | Pain Catastrophizing | English, Spanish |
|
| PedsQL - 23 | The PedsQL Inventory measures the health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. |
Core - Pediatric | Physical Functioning | English, Spanish |
|
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